I got a call first thing this morning from Dr. C's office wanting me to go in for x-rays again before our appointment. She had an abdominal, a chest and an upright chest (I had to hold her upright for 10 minutes before they took it). Her diaphragm and lungs still look great. He could see a little distension still in her bowels on the x-ray and has ordered an Upper GI-Small Bowel test for this afternoon. If it shows she is having a twisting in her bowel they will do surgery right away (later today or tomorrow). He also wants to look at her reflux since she has not been on meds for almost 2 months. He is optimistic that she won't need surgery and I am as well. He reiterated that she has malrotation by virtue of her CDH, it is the twisting that we want to keep an eye out for.
So, we head back today at 12:30 for the GI test. I can't feed her until after the test and she ate last at 8:30am. Oh, let's hope she stays sleeping until we go back or she will be one upset little girl.
Dr. C. also said he was planning on calling us anyway. I thought, why would our surgeon be calling us for no reason.....He said the hospital wants a family to do some radio spots and he thought we would be a good choice. He said he would give them our name and number. I think it would be great to have that chance since I could also spread the word about CDH at the same time. Maybe you will see Liviana on a billboard someday.
I will update after I get the results from the test today. Please keep us in your thoughts and prayers.
Check up DAY!
3 weeks ago