I am currently sitting outside an X-ray room door listening to my daughter scream her head off while she gets a bone scan. They would not let me stay in the room which is probably good because I would have grabbed her off the table and run out with her. Following the bone scan she is getting an MRI of her brain. The geneticist ordered these because of her CDH, VSD and Hemivertebrae to be sure there were no other anomalies.
They originally had the MRI scheduled for Friday morning and if needed would give her sedation, keeping her from eating 4 hours prior. I expressed my concerns about withholding eating and sedating her during the 24 hour period that we are doing all breastfeeding and planning on a weight gain and subsequent release. They decided to do the MRI today instead as a result.
I will let everyone know when we get some results.
The plan is for me to begin our first 24 hour period tomorrow morning, stay with her in the transition room tomorrow night and Saturday night and go home on Sunday. I'll keep you all posted. I am about to lose my computer battery so more later....
Amy
Spinal Fusion Revision
1 month ago
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7 comments:
Hope she makes it home soon! You are all in my thoughts.
-nononsensemama
I continue to pray for good health for your precious girl! Hope your homecoming plans work out as you wish. We miss you on BIN and look forward to more updates on your miracle baby!
-caemommy
Pookie,
You will do great with all of this babe. You have been such a strong person threw allof this. Stronger than i have and i love you and will be with you until the end of time. Your a wonderful mother and wife. We love you and we will get threw allof this
I hope you get to take her home soon and be a family all together. I know it must hurt like no other, but you're so close little Livy! I pray all the tests come back good for you guys. Still praying and checking in on ya, Shandy
Oh geez! I just read what Brad wrote and about broke down to tears. I'm proud of both you!
I am hoping for the best...that Livi gets to come home Saturday and all is well.
You are so strong and based on that little message from Brad, you also have wonderful, committed support.
I miss you in Wichita, but am so glad you are all doing great.
Oh that is such great news, Amy! Congratulations on bringing little Liviana home!!!! :)
Dawn
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