Monday, January 28, 2008

Day 11: It Was a Special Day

Today Liviana started feeds. They start with the colostrum from the first day and go from there (they are numbered and dated). She started with 1cc an hour and and switched to 2cc's an hour later in the day. She is tolerating it just fine, no signs of stomach or bowel problems so far. While she was probably thrilled to have her stomach suction tube removed from her mouth, she gained the tube for feeding in her nose, which I was told made her quite angry this morning.

I got to give Liviana a sponge bath today also. It was so great. At first she was not very happy but when I got to the point of washing her head and using the little brush her eyes rolled back and she was in heaven. It was so cute to see her. I held her up while the nurse changed out her bedding and she very kindly pooped all over my hand and the nurses hand. It was so cute and I did not mind one bit. I was then very excited when the nurse asked me if I had an outfit for her. I did not think we would be able to dress her this soon. I picked out a nice little pink sleeper for her. She looked so cute. The nurses changed out her KU bow and added a little pink one to go with her outfit.

Following her bath I stood next to her holding her hand for about 10 minutes while she looked at me. It was a special time and it is so great to see her little eyes and know that she knows momma is there.

Dr. K. was keeping up with her during the day and awaited the results of her echocardiogram, x-ray and blood gases before deciding if she was ready for more weaning and a possible move back to her conventional vent. While her Sats stay great and her blood gases stay great her pulmonary pressures were back up again on her echo. He decided to hold her at the her current settings for the night and revisit the issue in the morning. He said he can deal with the high pulmonary pressures since everything else is so great but he does not want to push her too much. While we were excited to think of her moving off the high frequency vent we don't want her to be compromised in any way. I have been told I will likely be able to hold her when she does eventually make the switch which I am so, so excited for.

She is starting to be awake a lot more which is wonderful. Brad is staying the night again and will probably spend some time reading to her and holding her hand for more of their special bonding time.

That is all for now. I have to get home to get Aria settled into bed. Her and Dooda were watching Winnie the Pooh when I left to say goodnight to Liviana.

Thank you again for your continued support, caring and comments. They mean alot to us in this difficult time.


Tricia said...

Sounds like she's doing great! Hearing that I'd be able to hold Cadenne after switching from the HFOV to CV was music to my ears. Soon, Amy! SOON!

She's precious!!

Anonymous said...

THis is one of those times when you say--one day at a time, only you change it to one thing/step at a time. patience, patience, and more patience. It was hard for Heather and Eric to wait to hold Sabrina, also. but to get something happening on the positive side is great. keep it up and keep the faith.
Sabrina's gma

Libby said...

Wow, she is moving right along! Bravo Livvy Bravo!!

Mama to Makena LCDH 9/30/06

Anonymous said...

It sounds like she is doing great! All those little things like giving baths and smiles and time together mean so much, we're glad you have gotten to do all of those fun things. Hope she can get on the convetional vent soon so you can hold her. Sending our thoughts to you!


Mrs. B said...

We'll keep up the praying, you just keep up the fighting sweet little Livvy. Soon you can snuggle with mommy and daddy. You're such a strong little girl....keep up the good work.

Kara said...

I'm glad you're getting some precious moments in there too. That's wonderful.

Shash said...

Things seem to be coming along beautifully. I pray you're holding up and staying healthy also. I love reading your blog and check in on Liviana and everyone else. You're so strong!!!