I called early this morning to find out if the results were in from Liviana and Giovanni's sulfatide tests. I got a call back as I made my way through Costco with Giovanni and Aria. The doctor wanted to see us in person today at 2:15. He didn't want to give the results over the phone. I have to assume this means that Giovanni tested positive for sulfatides which means he has MLD. Dear God in heaven my baby of all babies has this horrific disease too. I can't think of any other reason he would need to see us in person.
I will update tonight when I can and will update sooner on my Facebook than here. I just feel so numb and don't know what else to say right now.
Recovery Mode!!
5 months ago
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8 comments:
Praying that it's not the news you think it is. Hang in there, and know that you are loved and supported by so many!
Praying for you and your family. Thinking of you. ((HUGS))
Amy, I dont even know what to type. I am so sorry :(
I was sent over here by Vicki. I'm so, so sorry to hear about what your family has been facing. You are in my prayers.
Pamela
I'm so sorry!
Praying for you!
Praying for you and your family.. we have never met, but I have been anxiously checking back...thinking of your family
After everything we went through with Carter, I do not typically read people's blogs anymore. It just brings up too many bad memories. But after hearing about what you guys are going through, I felt compelled to tell you how hard we are thinking and praying for your family. To make it past the CDH beast, only to be confronted with something even worse is just beyond my comprehension. We have been beside ourselves since reading this blog post and are praying VERY hard that your family will beat the odds again. Much love!
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