Can you believe Liviana is 6 Months old? She has developed so much in just the last week or so. She grabs at anything and everything in her sight. She is so interactive....she is coming such a little person. She is SO happy and anyone who has the joy/privilege/luck to be around her will be touched by her.
She continues to make strides towards crawling. She has crawled backwards a couple of times (well scooted really). She uses her arms to move from side to side but has not quite gotten the hang of going forward yet. She actually lets out this really sad, pathetic little whine when there is something out of her reach. I try to help her along with moral support but I eventually move the object closer because she persuades me with her high pitched whimper and big blue eyes.
Liviana has graduated to sink baths. I don't usually get to see her sitting around with no clothes on so I had not noticed the shape of her spine/back while sitting. We of course knew that spinal issues were a real possibility because of her hemivertebrae but I had hoped that she would have an equal number on each side and they would cancel each other out.
In her bath the other night I was struck by the appearance of her back. The left side almost looked sunken in while the right protruded a little. Even when she changed positions it still looked uneven. Later, when I was looking at her again it almost seems like the shoulder blades on each side are no where near lined up. the left is lower and further to center while the right is higher and further to the right. Now, Livi did/does have the torticollis issue although it is MUCH improved. At first I thought it could be from one side being more developed than the other. The issues on her back however are opposite of what I would expect if that were the case.
She has her 6 month appointment tomorrow morning (yes, we have an awesome doc who sees patients on Saturdays). I will talk to her about it of course. She also has her follow up with the Orthopedic Surgeon, Dr. G. in September. I'm sure we will just wait until then because there is nothing they can do about it now, if she is developing curvature.
I have attached a photo of her back. I know you really probably can't see what I see but it is worth a shot. Incidentally, those little marks (dark spots on the left side, there are four total) are her surgery scars since it was done laproscopically. She is so amazingly lucky to have been in the hands of the surgeons here at Children's.
"Living with Scars" Project
3 weeks ago