tag:blogger.com,1999:blog-5916694748911412029.post5314010057618757109..comments2024-02-15T18:18:44.478-06:00Comments on Liviana's Journey: Metachromatic LeukodystrophyAmy AKA "Baba"http://www.blogger.com/profile/15496913107972434362noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-5916694748911412029.post-67769931317233069302015-06-10T04:12:45.340-05:002015-06-10T04:12:45.340-05:00Hi,
I am really sorry to hear this.
I know this...Hi, <br />I am really sorry to hear this. <br /><br />I know this is very late to respond on this link. I was looking for MLD related information, got this link. Don't know about current condition of Livi. <br />God bless her. <br /><br />Actually, My 1 year 5 month old kid is also suffering from MLD and he is getting on and off fever for 2-3 days in a week. <br /><br />We ran out of tears as we are loosing hope. But this is really big pain. I know as I am facing it. <br /><br />God bless your kids. <br /><br />Regards, <br /> ksnvrknoreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-72383369699167027212014-05-16T01:34:01.485-05:002014-05-16T01:34:01.485-05:00Thanks for commenting the best blog for Acne Scar ...Thanks for commenting the best blog for <a href="http://www.skindelhi.com/acne_scar.html" rel="nofollow">Acne Scar Treatment hauz khas</a><br /><br />Acne Scar Treatment hauz khashttp://www.skindelhi.com/acne_scar.htmlnoreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-84135946703620886902010-12-24T11:04:25.400-06:002010-12-24T11:04:25.400-06:00She is awesome! And you are too Amy. I keep you an...She is awesome! And you are too Amy. I keep you and your family in my thoughts and prayers!<br />Love,<br />FerFerhttps://www.blogger.com/profile/02399525219852871525noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-5356800897408315842010-12-15T19:26:58.428-06:002010-12-15T19:26:58.428-06:00I just found your blog through Maternal Lens. I am...I just found your blog through Maternal Lens. I am praying for you. My heart is with you. My prayers will not cease for your whole family.April Williamshttp://aprilwilliamsphotography.net/blog/noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-42494398114832915872010-12-15T16:15:02.245-06:002010-12-15T16:15:02.245-06:00I too am here from TML and I just want to let you ...I too am here from TML and I just want to let you know even though I have just heard of your Liviana she has already touched my heart. I will keep you all in my thoughts. Many hugs to you.Michelle Pixiehttps://www.blogger.com/profile/09266765257859122453noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-15904557446597895522010-12-15T12:32:55.784-06:002010-12-15T12:32:55.784-06:00I found my way here via the maternal lens, so we h...I found my way here via the maternal lens, so we haven't met, but I am sending up prayers for Liviana, for your son, your other children, your husband, and you- for strength, love, hope, and healing, and most of all joy. My family will be praying. xoLKhttps://www.blogger.com/profile/08430413820909607776noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-21932211920300702442010-12-15T11:52:05.376-06:002010-12-15T11:52:05.376-06:00I came over from the Maternal Lens blog to read mo...I came over from the Maternal Lens blog to read more about Liviana's story... please know that you, your family, and adorable little Liviana is in my prayers!Karahttps://www.blogger.com/profile/04346949594308636935noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-77175654865228393862010-12-12T00:02:24.794-06:002010-12-12T00:02:24.794-06:00you are in our prayers.you are in our prayers.Liz and Shanehttps://www.blogger.com/profile/10259533868125774997noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-67279583203578265082010-12-09T11:44:43.529-06:002010-12-09T11:44:43.529-06:00Liviana definitely gives the love back 10 fold. T...Liviana definitely gives the love back 10 fold. The other night when she was sitting in my lap playing peek-a-boo and giggling, I could honestly feel her love and joy radiating out of her little body. I didn't want to put her down, I could have carried her around all night. Thank you for sharing that little angel with us all.Wendynoreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-56271415525090790322010-12-09T09:06:13.405-06:002010-12-09T09:06:13.405-06:00Amy, my thoughts continue to be with you, Livi and...Amy, my thoughts continue to be with you, Livi and your family. You all are surrounded by lots of love and support. I think of you and Livi often. My heart goes out to you.Luxhttps://www.blogger.com/profile/13598591242151614491noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-49965375595296923082010-12-09T02:03:34.866-06:002010-12-09T02:03:34.866-06:00Amy,
My heart is constantly with you and Livi, ev...Amy,<br /><br />My heart is constantly with you and Livi, even now at 3am, I am up praying for you both. There are so many times I'm not even sure what to pray, so I'll definitely pray that Livi will be protected from the fever. I know when Ned had his near drowning incident and we almost lost him after the CDH, I was so bewildered at "why" the Lord would have brought us through such struggle only to have everything fall apart in the end. The night before Ned's accident, I stayed awake all night and read a book, "The Hiding Place". It gave me such perspective in such a terrible time....true story about the miracles God performed in this lady's life during her time in the German concentration camps. I just kept thinking back to that knowing that God has purpose and can work in the worst of situations. I believe He can still work in Livi's situation and I am praying that you will see His mighty hand and feel His presence. Much love from NC.Betsy Dellingerhttps://www.blogger.com/profile/13200607363007243644noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-29428900757414025072010-12-09T01:12:17.297-06:002010-12-09T01:12:17.297-06:00Thank you for sharing your feelings as well as the...Thank you for sharing your feelings as well as the updates. I know you well enough to know that you will celebrate every moment of her life. I just can't imagine how much your heart hurts. :( Livi is such a special little girl. I am praying for both her and Giovanni as you wait for the test results. HUGS from California!Triciahttps://www.blogger.com/profile/02622366355652306645noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-72035175586140565842010-12-08T21:57:02.422-06:002010-12-08T21:57:02.422-06:00Liviana IS awesome! I'm praying for you! Y...Liviana IS awesome! I'm praying for you! Y'all cross my mind at least a dozen times a hour. Sending you strength, to endure whatever comes in your path, love so you know your never alone. Liviana had a plan from the beginning to get you exactly where you need to be, livi is wise beyond her age!Dottyhttps://www.blogger.com/profile/12624318675496736214noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-57950358599181640262010-12-08T21:18:38.208-06:002010-12-08T21:18:38.208-06:00So sorry to hear this news! Praying for Livi to s...So sorry to hear this news! Praying for Livi to stay fever-free. Your family is always in my thoughts.Jenhttps://www.blogger.com/profile/01169013236451607972noreply@blogger.comtag:blogger.com,1999:blog-5916694748911412029.post-57886998182512294992010-12-08T17:06:05.254-06:002010-12-08T17:06:05.254-06:00Hi Amy,
We are so sorry to learn about Liviana...Hi Amy,<br /><br />We are so sorry to learn about Liviana's tentative MLD diagnosis. We're connecting you with other MLD families throughout the world via the MLD Foundation's MLD Family Discussion List™. <br /><br />I thought I would provide this link so your friends and family could <a href="http://mldfoundation.org/MLD-101-what.html" rel="nofollow">learn more about MLD</a>.<br /><br />Dean Suhr<br />President & Co-Founder<br />MLD FoundationDaan Suhrhttp://MLDfoundation.orgnoreply@blogger.com